I have a beautiful baby (toddler actually, but he will always
be my baby) who was born with Poland Syndrome/Sequence.
It is a rare disorder which affects 1:73 000 children in
the world. We have (since his birth) been struggling to
find a forum of some sort with other parents whose child
also has the same condition.
We have researched on the internet and there is stuff, but
it’s mostly repetition. I need to make contact with
parents who are experiencing this first hand and who can
offer some advice/assistance and I can do the same.
My baby is awesome, and he is definitely not ordinary. I
do believe that he was born to stand out - not fit in. I
do, however want to give him the best life and make things
as easy as I can for him (every parent wants that for their
children I am sure).
If you are a parent of a child with Poland Syndrome, please
contact me.
Poland
Syndrome is a rare hand and chest deficiency. It is characterised
by the under development or absence of the chest muscle and
webbing of the fingers on one side of the body.
